San Diego Area Resources for Individuals with Down Syndrome
- AAIDD- American Association on Intellectual and Developmental Disabilities
Association of Professional dedicated to support families of children with intellectual and developmental disabilities
- Down Syndrome.com
Has as its mission provide information about Down syndrome, and to help communities to be more accommodating. It is a place to connect with other families, find resources, and promote advocacy, among many other things.
- The ARC
The largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families
- The National Down Syndrome Congress
Offers general information on Down syndrome and a “New Parent Packet.
- The National Down Syndrome Society
Offers comprehensive information about Down syndrome. And works as a national advocate for the value, acceptance and inclusion of people with Down syndrome.
The helpline offers support from Monday though Friday, 9AM to 5PM EST. Available in 150 languages
- Parents helping Parents
Website providing valuable information to parents with young children with disabilities.
- The National Parent Network on Disabilities
Especially useful for parents of school-age children with disabilities.
- · National Down Syndrome Congress (NDSC)
La misión del NDSc es proporcionar información, apoyo y abogacía en todos los aspectos concernientes en la vida de los individuos con síndrome de Down
State of California government website
- The California State Council on Developmental Disabilities (San Diego Area)
Ensures that people with developmental disabilities and their families receive the services they need. The Website provided is for the San Diego area board.
For Families and Professionals:
- Exceptional Family Resource Center Provides support, information, and education for families of children with disabilities, and for professionals who work with them. Attends children of all ages, and disabilities.
9245 Sky Park Court, Suite 130; San Diego, CA 92123
- Down Syndrome Family Support in Temecula Valley
Support group for parents of young children with Down syndrome from birth to 5 years.
Meets 2nd Tuesday of the month from 5-7pm.
Call (951)696-1486 or (714)357-3702 or email DSChildren@verizon.net.
- Down Syndrome Association Of Orange County
Provides resources, services, and more, in order to provide everything that people with Down syndrome need to achieve their full potential
151 Kalmus Dr # M5,
Costa Mesa, CA
- DSA/EFRC Central Support Group for parents of young children with
For parents of children of all age groups
Meets monthly at the Harold J.Ballard Parent Center, 2375 Congress Street, San Diego 92110 from 6:30 – 8:30pm. Supervised play for children up to age 10 is available with reservation. Please call 594-7408
- DSA/EFRC North County Support Group for parents of young children with Down syndrome.
Invites you to attend a Series of Informational Meetings For parents of young children with Down Syndrome to became informed about programs, services, resources, and to socialize with other families.
Meets every second Tuesday of each month at : Teri Inc, 251 Airport Road (side door, north side), Oceanside, CA 92058 from 6:00pm – 8:00pm.
Please contact Trish at (760)761-5524 or email@example.com
- HOPE Infant Family Support Program
The HOPE Infant Family Support Program is a public special education program that offers services to infants and toddlers with special needs and their families. Limited to families with children between 0 to 3 years of age, who are residents of the North San Diego County.
910 W San Marcos Blvd #BI
San Marcos, CA
Support group for primary caretakers of children with a developmental delay or disability.
Meets from 7:00PM to8:30 PM. at the Crimson Center for Speech & Language
9606 Tierra Grande #107, San Diego, CA 92126.
Please call 858-695-9415 to reserve free
- Mommy & Me
Group for mothers and their children with Down syndrome
(birth to age three)
meets monthly at various locations in North County.
Call Michelle at 760-295-2637 or Rachael at 760-295-2530 or
For Families in the Military:
- Military Excepitonal Family Members Program
(858) 505-4136 extension 231
- Armed Forces YMCA
(858) 751-5755 extension 116
Specially for children:
- TEMECULA - Social group forchildren between 9 and 13 years of age.
Meets every other Thursday from 4:00PM to 5:30 PM. There is also a monthly group meeting and Saturday morning coffee for moms.
Contact Julie at 951-699-3127 or firstname.lastname@example.org.
- Down Syndrome Association Of Orange County
151 Kalmus Dr # M5,
Costa Mesa, CA
- National Down Syndrome Congress (NDSC
- La Asociación Síndrome de Down de San Diego:
Grupo de apoyo padres de niños con Síndrome de Down.
Sitio: Harold J. Ballard Parent Center, 2375 Congress Street, San Diego, CA 92110
Habrá una área de juegos supervisada para niños menores de 10 años. El espacio es limitado, por favor reserve su lugar con anticipación.
Para obtener más información o para hacer su reservación, por favor llame a Manuela Valdez al (619)594-7416 o escríbanos a email@example.com.
General Resources Listings
- Disability Online Resource Center-
Created by, and for people with disabilities. The site offers comprehensive, reliable information, products and services.
- Rady Children’s Hospital San Diego-Down Syndrome Center
The Down Syndrome Center improves the consistency of care for children with Down syndrome, serves as a resource for other medical professionals, and strengthens the social network for families.
7920 Frost St. #200
San Diego, CA 92123
For appointments call the Genetics Department
- Rady Children’s Hospital and Health Center (San Diego)
- Children’s Hospital at Mission (Mission Viejo)
- Children’s Hospital Los Angeles
- Children’s Hospital Oakland
- Children’s Hospital of Orange County
- Loma Linda University Children’s Hospital
- Los Angeles Shriners Hospital
- Lucile Packard Children’s Hospital (Palo Alto)
- Mattel Children’s Center at UCLA (Los Angeles)
- Memorial Care Miller Children’s Hospital (Long Beach)
- Northern California Shriners Hospital (Sacramento)
- University of California, Davis Children’s Hospital
- University of California, San Francisco Medical Center
- Children’s Hospital of Central California (Madera)
- Children’s Health Insurance Program
Health Care Financing
San Diego Regional Center
The San Diego Regional Center (SDRC) serves as a focal point in the community through which a person with a developmental disability and his or her family can obtain services and be linked to other community resources within San Diego and Imperial counties.
4355 Ruffin Rd , suite 200
San Diego, CA 92123-4307
Phone: (858) 576-2996
- The Music Therapy Center of California
7801 Mission Valley Court, Suite 104
San Diego, CA 92108
The Music Therapy Center of California offers a variety of services for children with special needs and their families, including music therapy sessions, summer camps, school-based programs, adapted lessons, home-based consultation, and group sessions.
- T.E.R.I. Inc’s Therapeutic Equestrian Program
A well coordinated, yet relaxed program of basic horsemanship, gymnastics, physical therapy, sensory integration and game playing, their lessons are designed to meet personal therapeutic goals and build on existing abilities and strengths. For children with Down syndrome and other disabilities.
or T.E.R.I.’s main office at (760)721-1706.
- San Diego Park & Recreation Department
Therapeutic Recreation Services
The City of San Diego Park & Recreation Therapeutic Recreation Services (TRS) program provides sports, recreation, leisure and outreach services to San Diegans with physical, mental and emotional disabilities.
War Memorial Building, Balboa Park
3325 Zoo Drive
San Diego, CA 92101
phone: (619) 525-8247
(TDD) (619) 692-3866
After School Programs
- Xcite Steps
Xcite Steps is an innovative after school and summer mentorship club dedicated to assisting children, teens and adults with developmental or cognitive disabilities. Xcite Steps has structured programs that fit the needs of persons with autism, cerebral palsy, Down syndrome, developmental disabilities, cognitive disabilities, fragile x, or any other challenges
Locations throughout San Diego area
- Little steps Christian School
During the summer months, two week-long full day summer camps are available for toddlers and preschoolers, with themes that include Outdoor Adventures, Music & Art, Young Engineers, and Exploring Animals.
6551 Soledad Mountain Rd,
La Jolla CA 92037,
phone (858) 551-7780
- Xcite Steps
offers summer camp for kids and teens who experience cognitive disabilities. providing personalized attention and works hard to build and maintain an environment in which campers feel like they can be themselves, open up, make friends and most importantly have fun!
- Booster Buddies
A club that offers recreational activities for young people with Down Syndrome over the age of 15.
contact Brenda Goldbaum at Bregold@aol.com or 858-452-0408.
- California Avenue School
Offers services for all children with or without disabilities from preeschool to 6th grade
215 W. California Ave.
Vista, CA, 92083
phone: (760) 630-4870
- Little steps Christian School
The Little Steps Christian Preschool, part of the Mount Soledad Presbyterian Church, is open to children ages two months to five years old, with or without disabilities.
6551 Soledad Mountain Rd,
La Jolla CA 92037,
phone (858) 551-7780
- TERI’s Learning Academy
A special education school dedicated to serving students in the San Diego, California area with developmental disabilities ages 8 to 22 years
3225 Roymar Rd.
Oceanside, CA 92058
(760) 721-1706 ext. 133
Fax (760) 547-2129
- Think College
Offers college options for people with cognitive disabilities.
- APSE- Advancing Employment Connecting People
APSE is the only national organization with an exclusive focus on integrated employment and career advancement opportunities for individuals with disabilities.
- Goodwill Industries of San Diego County
Goodwill’s Supported Employment program provides part-time and full-time paid employment for people with developmental disabilities. It also offers paid training, and other programs.
3663 Rosecrans St.
San Diego, CA 92110-3226 /
Phone: (619)225-2200 or (888)446-6394
STRIDE (Specialized Transportation Referral and Information for the Disabled and Elderly) Web Site
A database of public and private transportation providers in the San Diego County that you can search by zip code neighborhood.
- Best Buddies
Dedicated to establishing a global volunteer movement that creates opportunities for one-to-one friendships, integrated employment and leadership development for people with intellectual and developmental disabilities.
Tool Free: (888) 68-BUDDY (28339)
· Special Olympics Southern California
Special Olympics Southern California is a nonprofit organization that empowers individuals with intellectual disabilities to become physically fit, productive and respected members of society through sports training and competition.
Independent Living / Self-Advocacy
- California State Independent Living Council (SILC)
- California Foundation for Independent Living Centers
- Center for Independent Living (CIL)
- Independence Center
Books- For families, and professionals
- Down syndrome: the facts
A guide for parents of children with Down syndrome discusses the child’s health, development, and behavior, and explores education and treatment possibilities
Author: Mark Selikowitz
Publisher: Oxford University Press, USA; 2 edition (January 15, 1997)
ISBN-10: 0192626620 ISBN-13: 978-0192626622
- Down syndrome: visions for the 21st century
Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, this book addresses the needs of family members, caregivers, and professionals alike.
Authors William I. Cohen, Lynn Nadel, Myra E. Madnick
Publisher: Wiley-Liss; 1 edition (June 15, 2002) Language: English
ISBN-10: 0471418153 ISBN-13: 978-0471418153
- Down syndrome: a promising future, together
The book concludes with the personal stories of young adults with Down syndrome, including an account by Chris Burke of the television series Life Goes On. Other chapters include: Step-by-step advocacy skills Health and clinical care
Authors Terry J. Hassold, David PattersonEditorsTerry J. Hassold, David
Publisher: Wiley-Liss (October 23, 1998)
ISBN-10: 0471296864 ISBN-13: 978-0471296867
- Teaching Reading to Children With Down Syndrome: A Guide for Parents and Teachers (Topics in Down Syndrome)
Teaching Reading to Children with Down Syndrome presents a nationally recognized reading program for children with Down syndrome which effectively meets each child’s unique learning needs and style From introducing the alphabet to writing and spelling, the lessons are easy to follow. The many pictures and flash cards included appeal to visual learners.
Author: Patricia Logan Oelwein
Publisher: Woodbine House; 1 edition (February 1, 1995)
ISBN-10: 0933149557 ISBN-13: 978-0933149557
- Fine Motor Skills for Children With Down Syndrome: A Guide for Parents And Professionals (Topics in Down Syndrome)
This book explains the best practices and procedures for helping children master daily living skills for home, school, and an independent future
Author: Maryanne Bruni
Publisher: Woodbine House; 2nd edition (March 30, 2006)
ISBN-10: 1890627674 ISBN-13: 978-1890627676
- Gross Motor Skills in Children With Down Syndrome: A Guide for Parents and Professionals (Topics in Down Syndrome)
Children with Down syndrome master basic gross motor skills-everything from rolling over to running-just as their peers do, but may need additional help. This guide provides activities for parents and professionals to practice with children from birth through age six.
Author: Patricia C. Winders
Publisher: Woodbine House; 1 edition (August 1997)
ISBN-10: 0933149816 ISBN-13: 978-0933149816
- Early Communication Skills for Children With Down Syndrome: A Guide for Parents and Professionals
Focuses on speech and language development from birth through the stage of making 3-word phrases. This book offers a wealth of information on intelligibility issues, hearing loss, apraxia (difficulty planning oral-motor movements), and other factors that affect communication for children with Down syndrome.
Author Libby Kumin
Publisher: Woodbine House; 2 edition (July 2003)
ISBN-10: 1890627275 ISBN-13: 978-1890627270
- Babies with Down Syndrome: A New Parents’ Guide
A guide has benefited thousands of families since it was first published in 1985, is completely revised and updated in a new, third edition. Covering the best practices for raising and caring for children with Down syndrome through age five, this book is invaluable to new parents who have welcomed a baby with Down syndrome into their lives.
Editor: Susan J. Skallerup
Publisher: Woodbine House; third edition edition (September 19, 2008)
ISBN-10: 1890627550 ISBN-13: 978-1890627553
- Fasten Your Seatbelt: A Crash Course on Down Syndrome for Brothers and Sisters
The authors address preteens and teenagers who have a sibling with Down syndrome, answering questions that have been generated through their work with this population.
Authors: Brian Skotko, Susan P. Levine
Reading level: Young Adult
Publisher: Woodbine House (March 9, 2009)
ISBN-10: 1890627860 ISBN-13: 978-1890627867
- Bebes con sindrome de Down: Nueva Guia para padres(Spanish Edition)
Author: Susan Skallerup
Publisher: Woodbine House; 3 edition (July 9, 2009)
ISBN-10: 1890627992 ISBN-13: 978-1890627997
- Bienestar mental en los adultos con sindrome de Down: Una guia para comprender y evaluar sus cualidades y problemas emocionales y conductuales (Spanish Edition)
Este libro es un recurso inestimable para los padres, profesionales de salud mental, los profesores y los médicos que desean comprender mejor cómo promover la salud mental y resolver los problemas psicosociales en las personas con síndrome de Down.
Authors: Dennis McGuire Phd, Brian Chicoine M.D
Publisher: Woodbine House; first Spanish-language edition in USA edition (February 25, 2011)
ISBN-10: 1606130234 ISBN-13: 978-1606130230
- Sindrome de Down: Hacia Un Futuro Mejor: Guia Para Los Padres
El objetivo predominante de este manual es convencer a los padres de que hay esperanza, de que un niño con síndrome de Down es, en primer lugar y por encima de todo, un ser humano con todas las luces y sombras inherentes a la humanidad, y que puede contemplarse un futuro mejor con vivencias cercanas a las del resto de los niños.
Author: Siegfried M. Pueschel
Publisher: Brookes Publishing Company; 2 edition (January 30, 2003)
- Dakota’s Pride (2007)
In this documentary Tough questions are posed to and answered by a noted Harvard Physician, and parents of children with Down Syndrome. The documentary also celebrates the successes that have been and can be achieved by individuals with Down Syndrome.
- Down Syndrome: The First 18 Months (2004)
Provides a comprehensive introduction to this disorder that can help other parents understand what causes the condition and how to care for their babies during the critical early years
- Palomar College.
Offers classes in child development, including some specially tailored for people interested in working with children with disabilities.
1140 West Mission Road
San Marcos, California 92069-1487
phone: (760) 744-1150
- Miracosta College
Offers classes in child development, including in special education.
1 Barnard Drive
Oceanside, CA, 92056
Phone: (760) 208-1784
Toll Free: (888) 220-0805
- Autism Society of California
- Big Valley Down Syndrome Society
- Brighter Side of Down Syndrome of San Joaquin County
- Club 21 Learning and Resource Center
- Down Syndrome Association of Los Angeles
- DS Action (Down syndrome)
- Down Syndrome Information Alliance
- Down Syndrome Association of Riverside County
- Down Syndrome Association of San Diego
- Down Syndrome Foundation of Orange County
- Fresno Area Down Syndrome Society
- Down Syndrome Connection of the Bay Area
- Down Syndrome Association of Hemet
- Families for Early Autism Treatment (FEAT)
- Summit View School for Learning Disabilities
- Autism Spectrum Disorders Schools & Programs at The Help Group
- Learning Disabilities Association of California (LDA-CA)
- Prader-Willi California Foundation
- Sonoma County Down Syndrome Support Group
- Tourette Syndrome Association, Inc. Southern California Chapter
Recreation / Sports / Leisure
- Special Olympics Northern California (SONC)
- VSA arts of California
- VSA arts of California at Sacramento
- AbilityFirst Camp Paivika
Offers year round programs for children, teens, and adults with physical and deve lopmental disabilities. Camp Paivika has been welcoming campers since 1947, and is fully accredited by the American Camping Association. Our camping program encourages independence and broadens social contacts through recreation.
- California Lions Camp
Committed to providing special needs children of California and Nevada a safe haven to experience at California Lions Camp
- Camp Beyond the Scars
Camp Beyond the Scars consists of a three-day winter camp and a weeklong summer camp. Both camps provide a relaxed social setting, which offers burn-injured children the support and counseling needed to establish and enhance their self-esteem. Campers learn that there are other children who have had the same unfortunate experience. Camp has proved to be a positive, special experience for young burn survivors.
- Camp Bloomfield
Junior Blind of America’s Camp Bloomfield provides children and youth who are blind, visually impaired or multi-disabled with a natural and safe environment to develop self-esteem, build independence and fully experience the joys of childhood. Nestled in the Santa Monica Mountains in Malibu, this 40-acre campground offers various week-long camp sessions for children of all ages and disabilities.
- Camp Coelho & Camp Quest
Summer Camp For Children with Epilepsy & Seizure Disorders Ages 8 – 15.
- Via West Campus (formerly Camp Costanoan)
A residential, respite and recreational camp for children and adults, ages 5 and older, with physical and/or developmental disabilities.
- Camp Christian Berets
Offers unique, creatively crafted weeklong Summer Camps, designed to meet the special needs of persons with disabilities. We also offer Retreats tailored for our disabled guests on several weekends throughout the year.
- Camp Grizzly
For children between age 7 and 17 who are Deaf or hard of hearing, hearing but has deaf or hard of hearing parents or hearing but has deaf or hard of hearing siblings.
- Camp Krem
Provides summer camp for children and adults with developmental disabilities, such as Down Syndrome, Autism, and Cerebral Palsy.
- Camp Okizu
Offers the unique opportunity for children with cancer (and their siblings) to learn independence, nourish positive self-esteem and gain skills they never thought were possible.
- Camp ReCreation
Provides a residential summer camp program which offers participants with developmental disabilities opportunities for fun, social interaction, skill development, and spiritual growth while increasing the awareness and acceptance of our participants in the larger community.
- Camp Sunshine Dreams
For the child who has cancer a camp experience as similar as possible to the typical summer camp experience enjoyed by well children.
- Camping Unlimited
A residential camp for children with developmental disabilities in Northern California’s Santa Cruz Mountains.
- Camp Ronald McDonald at Eagle Lake
A fully accessible residential summer camp for children who are ‘at-risk’ with a variety of special medical needs, economic hardship and/or emotional, developmental or physical disabilities.
- Camp Ronald McDonald for Good Times
Mission to create a positive long-lasting impact on children with cancer and their families by providing fun-filled, medically supervised, cost-free, year-round camp programs.
- Camp Rubber Soul
To provide a unique recreational camp, integrating children with special needs and youth counselors to experience friendship, understanding, acceptance and allow respite for families and caregivers.
- Firefighters Kids Camp
Supports burn injured children by helping them to foster a positive outlook towards their future and their burn rehabilitation. Activities include rafting, swimming, boating, hiking, fishing, biking, rock climbing, astronomy, arts and crafts, campfire songs, games and more! The camp staff, activities and support programs have all been selected to meet the special needs of the young burn survivors while still allowing the kids to enjoy a traditional summer camp setting.
- Kris’ Camp
Therapy camp focusing on children with autism/autistic like challenges
- Painted Turtle
A Hole-In-The-Wall Gang camp for seriously ill children.
- Special Camp for Special Kids
Educational and recreational summer day camp for youth with disabilities in one-to-one peer relationships with volunteer counselors.
- Tikvah program at Camp Ramah
Designed for Jewish adolescents, ages 11 to 18, with learning, emotional, and developmental disabilities.
Research / Demonstration Programs
- Rehabilitation Research and Training Center on Aging with a Disability
- USC University Center for Excellence in Developmental Disabilities
Special Education / Early Intervention
Advocacy & Information