Noah and Genev’e Christmas 2011

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Free Webinar – Behavior & Down syndrome

The presentation on “Behavior and Down Syndrome” by Dr. David Stein will begin at 7pm.

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New minimum Wage Requirement For Household Workers.

Sign the petition here.

This must be stopped.

In an effort to create an ultimate Nanny state, the California Assembly has recently passed legislation that legislates the proper treatment of babysitters, as per the Assembly’s standards. The new legislation requires that babysitters receive rest and meal breaks. Additionally, parents who hire babysitters would be required to provide workers’ compensation benefits.

Written by Assemblyman Tom Ammiano (D-San Francisco, left) Assembly Bill 889 makes these requirements and more. The bill applies to all “domestic employees,” to include housekeepers, nannies, caregivers, and babysitters.

The Union.com reports:

Under AB 889, household “employers” (aka “parents”) who hire a babysitter on a Friday night will be legally obligated to pay at least minimum wage to any sitter over the age of 18 (unless it is a family member), provide a substitute caregiver every two hours to cover rest and meal breaks, in addition to workers’ compensation coverage, overtime pay, and a meticulously calculated timecard/paycheck.

Those who do not comply with the new measure could potentially result in legal action against the “employer,” which could include penalties, attorneys’ fees, and any other legal costs incurred in the process to a maximum of $4,000.

The bill is sponsored by the California Domestic Workers Coalition, and is touted by its supporters as one that will end “the historic exclusion of domestic workers from labor protections afforded to workers in other industries.” They claim that the bill was necessitated by the longstanding “abuse, mistreatment and other labor violations that occur because of the isolated and vulnerable nature of this workface.”

The bill has already passed the Assembly, and is expected to move through the Senate rather quickly as a result of partisan support from all the Democrats. It is expected to be opposed by all Republicans. The next step would then be for the Governor to sign the bill into law.

Newser notes that there are some fortunate exceptions to the bill:

One caveat that should comfort harried parents a bit: The requirements would only apply to babysitters over the age of 18, and only if they are not family members — so getting free labor from your teenage kid is still totally fine.

Still, analysts are concerned that such a bill would likely hamper the creation of jobs because families will be less likely to hire housekeepers, nannies and babysitters, opting instead for the use of “institutionalized care rather than allowing children, the sick or elderly to be cared for in their homes.” PJ Tattler writes, “AB 889 will make live-in caretakers and senior companions completely unaffordable, forcing countless seniors into institutionalized living situations, whereas until now they could remain in the comfort of their own homes, with semi-affordable caregivers.” According to PJ Tattler, however, that matters little to those who are engaged in a “march toward a progressive future.”

Likewise, parents have articulated concerns over the bill, particularly as it relates to babysitters and the notion that they are entitled to breaks. Jeanne Sager posted in her blog:

Not only do you have to do the impossible of tracking down a responsible college kid to hang with your tot on a Friday night so you can actually sit down for one meal where you don’t have to cut up someone else’s food. Now you have to find TWO of them. And the second one will have to agree to just show up every two hours for 15 minutes at minimum wage. AND you’re going to have to explain to your 3-year-old why Miss Madison has to get up from the rousing game of SpongeBob Memory to go outside and take a break while this other guy comes in … for 15 minutes.

Apparently, it could have been worse. Prior to the bill’s revisions, the original version wanted to mandate that domestic work employees receive paid vacation.

Republican State Senator Doug LaMalfa asserts that the legislation marks an “unprecedented measure of legal recourse provided no other class of workers — from agricultural laborers to garment manufacturers.”

LaMalfa’s spokesman Mark Spannagel also commented on what he perceives to be the absurdity of the bill. “Now you’ve got to worry … about getting sued for not having a detailed wage statement and having meal and rest breaks for your baby sitter? Is this really a priority for California right now?”

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Communicating Partners Dr. James D. MacDonald’s Website Helping Parents Help Children. Programs for Parents, Therapists & Educators

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Video Photo Special Needs Student’s Fairy Tale Homecoming

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Sun City Center’s Jackie Pepin lived to 72 years old with Down Syndrome

http://www.tampabay.com/news/obituaries/sun-city-centers-jackie-pepin-lived-to-72-years-old-with-down-syndrome/1199620

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Identicle Twins with Down Syndrome almost 1 in a million.

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Email your Representative below and urge him/her to attend a briefing of the US Congressional Down Syndrome Caucus

Email your Representative from the following states now! Urge him/her to attend an important briefing on Down syndrome research.

Take Action!

Email your Representative below and urge him/her to attend a briefing of the US Congressional Down Syndrome Caucus on Down Syndrome research which is being held on Tuesday, October 25th at 4:30 pm in room 121 of the US House of Representatives Cannon Office Building. This briefing is being organized by Congresswoman Cathy McMorris Rodgers (R-WA) who is a co-chair of the Down Syndrome Caucus and herself a parent of a child with Down syndrome.
The briefing will assist the Congressional Down Syndrome Caucus in developing policy priorities by providing a comprehensive overview of the state of research in Down syndrome and other rare disorders by demonstrating how the study of rare disorders will inform more common disorders. Presenters will discuss the unique biology of Down syndrome, current research efforts in Down syndrome, including NIH and privately funded efforts, and barriers to Down syndrome research. By improving awareness of Down syndrome research, presenters will be able to show that an improved research infrastructure will provide opportunity for translational and collaborative research that will not only benefit the lives of people with Down syndrome, but the general public as well.
Congressional Targets:
Anders Crenshaw – (R- FL);
Vern Buchanon – FL;
Nita Lowey – (D- NY)
Carolyn McCarthy – (D-NY)
Lois Capps –(D- CA)
Susan Davis –(D- CA)
Dian DeGette –(D- CO)
Michael Rogers –(R- MI)
Michael Burgess – (R-TX)
Ruben Hinojosa – (D-TX)

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National Down syndrome Employment Month

LOVE THIS! Attached is an Awesome photo which had the caption:

“We Can Do It!,” a new job-generating campaign, launched across San Francisco this month and is expected to build awareness and create employment opportunities for San Francisco Arc’s “ready, willing and able to work” clients during October, National Disability Employment Awareness month

San Diego Down Syndrome Hire an Employee month

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Thursday, September 22nd at 7:30pm. Added showing of “Anita”

I hope you and your family had a nice weekend.

I really want to thank you for making the Community Partnership between San Diego Down Syndrome and the MACSD possible. I heard from so many people that they loved Anita.

Now, because we did have a blackout on the closing night the theater has been kind enough to give an additional screening time this Thursday, September 22nd at 7:30pm.

We want to let everyone know that may have missed out due to the blackout.

Thank You,
Eddie Cervantes

619-230-1938 x102

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National Down Syndrome Month

San Diego Down Syndrome. Org

For Immediate Release

Contact: John Leslie

San Diego Down Syndrome. Org
12222-a Woodside Ave Ste 238
Lakeside, CA 92040

jleslie@sandiegodownsyndrome.org

The National Down Syndrome Society and San Diego Down Syndrome. Org. Celebrate the Acceptance and Inclusion of

People with Down Syndrome this October.

Down Syndrome Awareness Month is marked by national programs to promote awareness for the abilities and achievements of those with Down syndrome.

San Diego – October 1, 2011. This October, the National Down Syndrome Society (NDSS) and San Diego Down Syndrome. Org invite people everywhere to celebrate Down Syndrome Awareness Month in recognition of the many abilities and achievements of people with Down syndrome.

People with Down syndrome are living longer than ever before. The life expectancy of individuals with Down syndrome has increased dramatically in recent decades – from 25 in 1983 to 60 today. One in every 691 live births is a baby born with Down syndrome, and it is the most commonly occurring chromosomal condition. Due to recent advancements, people with Down syndrome can, and do, live healthy and fulfilling lives- they attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.

Since October of 1981, the Down syndrome community has been celebrating Down Syndrome Awareness Month. San Diego marks this month with the return of fantastic programming to promote awareness for the abilities and achievements of people with Down syndrome.

“It’s very important to raise awareness and make a difference for people with Down syndrome by participating in a Buddy Walk. The focus is not on our disabilities, but on our abilities that count,” said Actor and NDSS Goodwill Ambassador Chris Burke. “At the Buddy Walk, we all walk together.”

Burke has also participated in the My Great Story campaign, which seeks to ignite a new way of thinking about people with Down syndrome by showcasing and collecting inspirational stories told by people with Down syndrome as well as their family members, friends, colleagues, employers and many others. San Diego residents are encouraged to submit their stories, which are displayed in a beautiful online storybook.

The campaign has garnered strong visibility in a profound timeframe. To date, over $6 million has been donated in national and regional ad space and services, and there have been over 225 million impressions across the country. The campaign has had placements in publications such as Allure, Fortune, Golf Digest, The New Yorker, Newsweek, Time, Vogue and Wired, among other noteworthy outlets. The My Great Story campaign has attracted other types of media as well, including placements in bars, airports, checkout counters and hospital patient and waiting rooms.

About Buddy Walk

Since 1995, the National Buddy Walk program has grown from 17 Walks to over 250 Buddy Walk events taking place in cities across the country and in select international locations.

To learn more, visit www.buddywalk.org or click here to find a Buddy Walk near you.

About My Great Story

MGS was created pro-bono by NY based Ad Agency, Pedone. After 14 months of market analysis the Pedone team developed a campaign in an effort to shape the future for all people with Down syndrome. The online story book was developed by CT based Interactive Agency York and Chapel, who spent over 12 months developing the user friendly technology, sophisticated design and esthetics. Two of the stories in the collection have been turned into print ads, shot by photographer Zachary Scott. A 30-second public service announcement featured the campaign stars TV Hosts Nancy O’Dell and Meredith Vieira, and Actors John C. McGinley and Chris Burke.

To learn more, visit www.ndss.org/stories.

San Diego Down Syndrome sponsors events and activities in San Diego County as well as supports families involved with individuals with Down Syndrome.

www.sandiegodownsyndrome.org

About NDSS

The National Down Syndrome Society is a nonprofit organization representing the more than 400,000 Americans with Down syndrome. The mission of NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome. The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity enhance their quality of life, realize their life aspirations, and become valued members of welcoming community. NDSS has over 350 affiliates nationwide.

To learn more about NDSS, visit www.ndss.org.

Click here to download the PDF version.

Here are some links you might find helpful in reaching out to both the press and your members this Down Syndrome Awareness Month:

Buddy Walk Website
My Great Story Website

My Great Story E-Media Kit

Chris Burke: My Great Story

Like us on Facebook

Follow us on Twitter

National Down Syndrome Society

666 Broadway

New York, New York 10012

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Your Invited to … A HEARTWARMING FILM FROM ARGENTINA: ANITA

Anita is a strong and heartwarming film that is unique and brings to light a main character out of the Hollywood norm in Anita, a young woman with Down Syndrome that makes an impact on the lives of those she briefly encounters as she is left wondering around lost and confused following a tragic event.

Buy tickets at the door or here http://www.sdlatinofilm.com/

Location
UltraStar Mission Valley Cinemas Hazard Center
7510 Hazard Center Dr. (off 163 Freeway & Friars Rd)
Time 8:30 PM

Finally, as a community partner, mention your organization get the membership rate of $8 vs $10 for tickets. They will just have to mention San Diego Down Syndrome at the ticket booth.

Click here to see the trailer….. ANITA….You are invited… Stay tune for additional info

Anita is a strong and heartwarming film that is unique and brings to light a main character out of the Hollywood norm in Anita, a young woman with Down Syndrome that makes an impact on the lives of those she briefly encounters as she is left wondering around lost and confused following a tragic event.

ANITA: Anita is a young Argentine woman with Down Syndrome from the Jewish community in Buenos Aires. She lives with her loving family above a store founded by her late father. When a prearranged meeting with her mother goes awry, Anita gets lost in the city while looking for her. This is the heartwarming story of how Anita receives help and care from strangers, as she learns to care for herself while touching the lives of others in this beautiful film from Argentina. Starring Academy Award Winning actress, Norma Aleandro (“The Official Story).104 minutes

Anita will screen for one-week exclusively at UltraStar Mission Valley Cinemas at Hazard Center (off the 163 Freeway and Friars Rd.). Screening times are: 11:30am, 1:45, 4:00pm, 6:15pm, 8:30pm, and 10:45pm (Fri & Sat only).

Tickets are $10.00 for General Audiences, $8.00 for Students, Seniors & Media Arts Center San Diego members. Individual tickets can be purchased prior to each screening at the UltraStar Mission Valley Cinemas at Hazard Center box office (7510 Hazard Center Dr., SD, CA 92108). Become a member today to receive discounts and 2 free tickets! Sign up at www.mediaartscenter.org/membership.

As Community Partners we hope to bridge relationships between the San Diego Down Syndrome, the San Diego community and Media Arts Center San Diego’s 12th annual Cinema en tu Idioma film series.

Anita

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New York Times Magazine on Cure Sought For Down Syndrome

New York Times Magazine on Cure Sought For Down Syndrome

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New Drug for Down Syndrome Almost Here

Read about it here

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Man with Down’s syndrome, called a freak & punched in the face in Dartford, tells of how he forgave his attacker

See article here

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Free Fishing Trip scheduled for Wed July 20th, 2011 * CANCELLED

Learn More About Friends of Rollo Here.

Sign up here

Free Fishing License Form

The trip check in time is 11:30 AM at Seaforth San Diego and the boat leaves at 12:30 PM. We can have 50 fisherman ages from 6 and up. An additional 30 volunteers and/or parents to accompany. There is no cost at all and lunch is provided for the fisherman for free. Parents and/or volunteers must bring their own lunch and each adult must have a fishing license (available at the dock) whether they are fishing or not. Rods and reels are all provided.

All that is asked is that letters and pictures be sent from participants to share their experience to San Diego Down Syndrome after the trip.

Their will be also prizes and awards for the most fish, biggest fish and more.

* all passengers over 15 years of age must have or purchase a fishing license. You may do so the day of the trip

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Day at the Beach for persons with disabilities

Surfer Tifani VanArtsdalen cheers
on a Kids Day guest

Helping underprivileged kids enjoy sun and surf!

Welcome to Day at the Beach! “Kids’ Day” is an annual non-profit event featuring a full day of sun, fun and surfing instruction for underprivileged children in San Diego County.

Now in its 23rd year, over 60 children from St. Vincent de Paul Shelter for Homeless Families, located in San Diego downtown, are bused to the beach at La Jolla Shores for an unforgettable experience. The kids receive surfing lessons from WindanSea Surf Club volunteers and enjoy a beachside barbecue lunch, complete with bags of goodies donated by local and national sponsors.

The day is about learning and building self-esteem as much as it is about fun. The surfing lessons teach coordination, confidence, teamwork and an appreciation of nature. The kids benefit greatly by learning these skills from positive, adult role models in a fun environment.

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Singing helps children with Down Syndrome

Singing helps children with Down Syndrome

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A Down’s Syndrome baby will expand your world’: How Sarah Palin imagined God talking to her in extraordinary and touching letter about her unborn son Read more

A Down’s Syndrome baby will expand your world’: How Sarah Palin imagined God talking to her in extraordinary and touching letter about her unborn son

Read more: http://www.dailymail.co.uk/news/article-2002688/Sarah-Palin-plays-God-touching-email-unborn-son-Trigs-Downs-Syndrome.html#ixzz1P7BF3lcw

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